The purpose of the registry is to perform epidemiological research and to complement and build on analyses that the individual national and regional registries carry out themselves. In particular, the ERA-EDTA registry compares disease patterns and related health care practices, as well as treatment outcomes across the health systems of the different European countries.
The registry also conducts analyses where patient numbers in individual national and regional registries are too small to yield meaningful information. As the prevalence and incidence of the need for dialysis and transplantation is predicted to increase with the ageing population and the upwards shift in obesity in most EU populations (a major driver of multimorbidity and kidney disease/kidney disease progression) the ERA-EDTA registry provides important comparative data on who is selected for dialysis and kidney transplantation and on its outcomes that provides input to researchers and health policy makers.
You can find more information on the ERA-EDTA website.
Contact persons APH: Kitty Jager, Vianda Stel, Anneke Kramer (datamanager)
Contact: erareg@amsterdamumc.nl